This post is intended to sum up everything we learned and how we worked through this process. Hopefully it can serve as a guide to anyone looking to try this process themselves. Here are the steps we took.
- Research. Read about this procedure. Learn about all of the options. Learn from other people who’ve tried it with or without success. With alternate healing methods, you are going to have to be the expert and educate your doctor. Present them with studies you’ve found, papers to read, etc.
- Friend ‘Sally Brown’ on Facebook – these people have a wealth of information to share. They are all sufferers of IBD or family of. Many have tried FMT and will gladly share their knowledge and resources.
- Visit The Power of Poop website, TONS of information.
- Read Ulcerative Colitis from the Bottom Up: A memoir of home treatment with fecal bacteriotherapy by Vivek Apte.
- Here is a recent study, at the time of this writing, on FMT and C. Diff.: Netherlands Study of UC and C.Diff
- Here is a recent study, at the time of this writing, on FMT, UC and children/young adults: Pub Med
- Search terms for Google: FMT, Fecal Microbiota Transplant, Fecal Bacteriotherapy, HPI, Human Probiotic Infusion, Poop Transplant.
- Find a doctor. I strongly recommend finding a medical professional that will at least help you make decisions along the way (each case of UC is different with it’s own set of challenges), and to help facilitate the donor testing that I consider extremely necessary. If your conventional GI doctors won’t help you, find a naturopathic doctor. They are more likely to be open to alternative treatments and have the same privileges that conventional MD’s have.
- Power of Poop has a list of doctors that do FMT. If there isn’t one in your area, make some calls to local GI’s and ask. Remember to try naturopathic docs too!
- Find a donor and get them tested with the help of a doctor, according to the guidelines in this doc: HPIHomeInfusion.pdf
- Purchase your supplies. Here is the list of Supplies we purchased.
- Two weeks prior to beginning the FMT’s:
- Put the patient on a low fiber diet/no cured meats (to starve the gut bacteria) according to the HPIHomeInfusion.pdf document. Begin antibiotics if you are choosing that route.
- Put the donor on a high fiber/no cured meats diet according to the HPIHomeInfusion.pdf document. Here are some high fiber recipes we enjoyed: HighFiberRecipes.pdf
- When you are ready to go, you’ll need the following:
- 1 day prior, you want to do a bowel lavage. We followed these instructions: ColonPrep.pdf. Some folks have more sensitive systems and opt to just do 24 hour liquid diets with no lavage. Use your doctor and your instincts to make the decision that is best for you.
**Thought: Retaining seemed to be easier at the beginning with the empty colon. I wonder if it would be beneficial to recleanse the colon after 5 days, to start with an empty colon again for the last 5 FMT’s?**
- Donation Instructions for the donor: DonorInstructions.pdf
- FMT Preperation Instructions: PreparationInstructions.pdf (We hung this on the bathroom mirror with tape). These are instructions written by Vivek Apte with slight modifications that we found helpful for our process.
- Recipient Instructions: RecipientInstructions
OUR COSTS :
|Note: We are self-insured with a high deductible policy ($2500). Your out of pocket costs could vary based on your insurance coverage, doctors and testing facilities as well as the region you live in.|
|Item||Actual Cost||Amount Paid|
|Doctor’s visit||$145.00||$0 (insurance covered)|
|Blood and Urine Tests||$1019.50||$331.24 (after insurance discounts)|
|Stool Testing||$454.71||$454.71 (no insurance discounts)|
|Follow up Doctor’s Visit||$145.00||$0 (insurance covered)|
|Enema bottles, heating pad, Probioplex||$97.16||$97.16|
|More Enema bottles, hospital pads, gloves||$49.68||$49.68|
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