It seemed like forever to lead up to doing the FMT. The whole process went a lot smoother than any of us anticipated. Now comes the hard part. The waiting.
As I’ve mentioned in the previous series of posts, Let’s Talk Poo, my daughter wasn’t having a ton of symptoms at the point that we began FMT. She had managed to get her flare under control with Sulfasalazine. Because we started with what looked like a healthy gut, we’re hoping that will increase the chances of the new bacteria colonizing. I don’t feel like we’ll really know until we wean off of the meds in July and then see how things go for the next year or so.
That being said, I felt like I needed a way to document her progress, even if it was slight. I created a survey for Ashley to take. I had her take one and describe what it was like for her to be in a flare for our baseline. I intend to have her take one every month now, post FMT.
Below are the first surveys she took, representing what a flare was like for her and the second survey she took, which represents where she is at now, 1 month post FMT.
Each month I’ll post a new survey and any thoughts. This series won’t be nearly as active as the last, but hopefully it will provide some useful information. I have copies of the survey for download (both editable and already in pdf form) on the Let’s Talk Poo 20 post.