May 8, 2013

Life After Poo (1 month post FMT)

It seemed like forever to lead up to doing the FMT.  The whole process went a lot smoother than any of us anticipated.  Now comes the hard part.  The waiting.

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April 12, 2013

Let’s Talk Poo 20 (Summing it All Up)

This post is intended to sum up everything we learned and how we worked through this process.  Hopefully it can serve as a guide to anyone looking to try this process themselves.  Here are the steps we took.

  1. Research.  Read about this procedure.  Learn about all of the options.  Learn from other people who’ve tried it with or without success.  With alternate healing methods, you are going to have to be the expert and educate your doctor.  Present them with studies you’ve found, papers to read, etc.
  2. Find a doctor.  I strongly recommend finding a medical professional that will at least help you make decisions along the way (each case of UC is different with it’s own set of challenges), and to help facilitate the donor testing that I consider extremely necessary.  If your conventional GI doctors won’t help you, find a naturopathic doctor.  They are more likely to be open to alternative treatments and have the same privileges that conventional MD’s have.
    • Power of Poop has a list of doctors that do FMT.  If there isn’t one in your area, make some calls to local GI’s and ask.  Remember to try naturopathic docs too!
  3. Find a donor and get them tested with the help of a doctor, according to the guidelines in this doc: HPIHomeInfusion.pdf
  4. Purchase your supplies.  Here is the list of Supplies we purchased.
  5. Two weeks prior to beginning the FMT’s:
    •  Put the patient on a low fiber diet/no cured meats (to starve the gut bacteria) according to the HPIHomeInfusion.pdf document.  Begin antibiotics if you are choosing that route.
    • Put the donor on a high fiber/no cured meats diet according to the HPIHomeInfusion.pdf document.  Here are some high fiber recipes we enjoyed: HighFiberRecipes.pdf
  6. When you are ready to go, you’ll need the following:
    • 1 day prior, you want to do a bowel lavage.  We followed these instructions: ColonPrep.pdf.  Some folks have more sensitive systems and opt to just do 24 hour liquid diets with no lavage.  Use your doctor and your instincts to make the decision that is best for you.

**Thought: Retaining seemed to be easier at the beginning with the empty colon.  I wonder if it would be beneficial to recleanse the colon after 5 days, to start with an empty colon again for the last 5 FMT’s?**

  1. Switch the recipient of the FMT’s to a high fiber diet as soon as the infusions start and begin taking the Probioplex Intensive Care.  My suggestion is also that the recipient continue to avoid processed/cured meats for a minimum of 3 months.  Our doctor recommended avoiding alcoholic beverages for at least 2 weeks following FMT.
**I’ve created a survey that we’ll be using for our daughter, to track her symptoms before and after the FMT.  It includes the items that were relevant to her.  I’ll include the FMTSurvey.pdf  which can be used as-is and filled out on the computer as well as the FMTSurvey.doc in case anyone wants to modify it for their own use.**

OUR COSTS :

Note: We are self-insured with a high deductible policy ($2500). Your out of pocket costs could vary based on your insurance coverage, doctors and testing facilities as well as the region you live in.
Item Actual Cost Amount Paid
Doctor’s visit $145.00 $0 (insurance covered)
Blood and Urine Tests $1019.50 $331.24 (after insurance discounts)
Stool Testing $454.71 $454.71 (no insurance discounts)
Supplies $94.16 $94.16
Follow up Doctor’s Visit $145.00 $0 (insurance covered)
Enema bottles, heating pad, Probioplex $97.16 $97.16
More Enema bottles, hospital pads, gloves $49.68 $49.68
Totals: $1860.21 $1026.95

Disclaimer

The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education and should not be used as a substitute for professional diagnosis and treatment.

Please consult your health care provider before making any healthcare decisions or for guidance about a specific medical conditions and treatments. Glimpses of Me expressly disclaims responsibility, and shall have no liability, for any damages, loss, injury, or liability whatsoever suffered as a result of your reliance on the information contained in this site. Glimpses of Me does not endorse specifically any test, treatment, or procedure mentioned on the site.

*Names have been changed for privacy

April 11, 2013

Let’s Talk Poo 19 (Day 12, Infusion 10)

Last day!  What an experience.  More so for poor Lee who had to stick to an unfamiliar diet and make the infusions, and Ashley who had to suffer the infusions.  I am so proud of my family!  Ashley managed to hold this last infusion for 3.5 hours.  Lee was late today and Ashley and I are taking a dance class Thursday evenings. She was not confident in retaining during the class.

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April 10, 2013

Let’s Talk Poo 18 (Day 11, Infusion 9)

We are almost done!  Lee is very excited that after his donation tomorrow, he can splurge on Easter candy.  He’s done so well managing those cravings, which is a huge feat for him.  Anyone who knows him will tell you he eats an insane amount of candy on a daily basis.  Lee and I are both pretty surprised there were no withdrawals!

Ashley is also very excited to be finished with this process.  She has a life to get back to and school to finish up!  She’s also impressed me with her willingness and determination to make this work.

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April 9, 2013

Let’s Talk Poo 17 (Day 10, Infusion 8)

A busy day yesterday threw me off of my game and I forgot to post.  Ashley infused 2 slightly thin paint consistency infusions today.  She was able to hold for 5.5 hours.

We still haven’t seen any negative effects, which is great.  She is noticing that her bowel movements are smelling differently now.  More like dads.  This has been documented many times by other folks who have done FMT.  I see it as a good sign!  I’m hoping it means that his biome is taking over!

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April 8, 2013

Let’s Talk Poo 16 (Day 9, Infusion 7)

Lee was back on track today.  We had a two bottle, paint consistency donation at about 11am.  It seems like Ashley has more difficulty retaining when she’s had a day off.  It’s not a very scientific observation, since it’s just been twice.

She had a bowel movement prior to her infusion, as usual.  Today she had a lot of urgency and spent most of her retention time lying down.  She managed to hold for 4.5 hours.  We’ll take it!

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April 7, 2013

Let’s Talk Poo 15 (Day 8)

Weekends always throw Lee off of his schedule and today was no exception. No donation today. Tomorrow ought to be plentiful!

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Let’s Talk Poo 14 (Day 7, Infusion 6)

More than half way through our 10 day process and I’m happy to report that it’s still been relatively uneventful.  Ashley held yesterday’s infusion a full 24 hours to the minute.  She continues to feel happy and motivated.

Lee was able to produce enough donation today for the standard 2 infusions of paint consistency.  Ashley infused at about 12:30pm today.  The first hour was rough.  She reported a lot of “air” being infused today.  She wasn’t sure what she’d done differently, but it caused a lot of discomfort in her lower bowels.  She opted to take some GasX and then to continue to lie down for a while.  After about an hour, things had settled and she was good to go.

She managed to hold today’s infusion until 6:30pm.

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April 5, 2013

Let’s Talk Poo 13 (Day 6, Infusion 5)

Today was a good day.  Ashley continued to enjoy her new found energy.  She cleaned the house again today and washed her car inside and out.  I’m always so surprised that she can move around that much while holding an infusion.

She’s had some gas, but we are pretty sure it’s due to the fiber as it’s high up in her intestinal tract.  Moving around and being active has been enough to manage it.  I am so thankful that we don’t have food sensitivities or allergies to work around.  I consider us very lucky on that count.

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April 4, 2013

Let’s Talk Poo 12 (Day 5)

Well, today was a bust. Lee couldn’t produce enough ‘material’ to create an infusion so we took the day off. Ashley was bummed because she is just wants to ‘get this over with’. Lee was disappointed because it means one more day until he can gorge himself on candy.

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